# Patient and caregiver experiences with a patient-support program for setmelanotide treatment of patients with Bardet-Biedl syndrome.

> PubMed lists PMID 40484968 in Orphanet journal of rare diseases as Journal Article, with publication-date metadata of 2025-06-08 (day precision). PeptideScanner associated the retained record with the identity slug setmelanotide. These fields reproduce attributed bibliographic metadata and do not summarize or endorse the article's findings.

- Evidence object: `story:pubmed-pmid-40484968-setmelanotide:v1`
- Evidence domain: Literature metadata
- Date in source: 2025-06-11
- Source checked: 2026-07-30
- Published by PeptideScanner: 2026-08-13
- Story landing page: https://peptidescanner.com/stories/pubmed-pmid-40484968-setmelanotide/
- JSON record: https://peptidescanner.com/evidence/v1/objects/pubmed-pmid-40484968-setmelanotide-v1.json
- Content SHA-256: `1bb674973498e10246f72497b2c5bc1619062edea421dbcafec282ec2b34044c`

## Claims and source pins

### Headline

Patient and caregiver experiences with a patient-support program for setmelanotide treatment of patients with Bardet-Biedl syndrome. ([`pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99`](#source-pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99))

### Summary

PubMed lists PMID 40484968 in Orphanet journal of rare diseases as Journal Article, with publication-date metadata of 2025-06-08 (day precision). PeptideScanner associated the retained record with the identity slug setmelanotide. These fields reproduce attributed bibliographic metadata and do not summarize or endorse the article's findings. ([`pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99`](#source-pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99))

### Paragraph 1

PubMed lists PMID 40484968 in Orphanet journal of rare diseases as Journal Article, with publication-date metadata of 2025-06-08 (day precision). PeptideScanner associated the retained record with the identity slug setmelanotide. These fields reproduce attributed bibliographic metadata and do not summarize or endorse the article's findings. ([`pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99`](#source-pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99))

### Paragraph 2

This page reproduces bounded bibliographic metadata attributed to PubMed. Its title and publication details are source metadata, not PeptideScanner's endorsement or an assertion of safety, efficacy, or scientific truth. ([`pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99`](#source-pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99))

## Sources

<a id="source-pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99"></a>
- **Patient and caregiver experiences with a patient-support program for setmelanotide treatment of patients with Bardet-Biedl syndrome. · retained source version 1:2025-06-11:current:ad972f169e992c541360bbf196f5a5a414536d4750243dfb1f1346e7d636f612** — PubMed; class A. [Open source](https://pubmed.ncbi.nlm.nih.gov/40484968/) (`pubmed-observation-pmid-40484968-2025-06-11-ad972f169e99`)

## Correction lineage

No correction is recorded for this version.

## Reporting boundaries and unknowns

PeptideScanner reproduces bounded bibliographic metadata attributed to PubMed. It does not summarize or endorse the article's findings.

- Sources outside the selected public PeptideScanner bundle may exist and are not represented by this object.
- This object does not determine whether cited records agree, corroborate one another, or establish scientific truth.
- This object does not determine safety, efficacy, causality, or suitability for any person.

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## Suggested citation

PeptideScanner. "Patient and caregiver experiences with a patient-support program for setmelanotide treatment of patients with Bardet-Biedl syndrome." Version 1, published 2026-08-13. https://peptidescanner.com/evidence/v1/objects/pubmed-pmid-40484968-setmelanotide-v1.json SHA-256: 1bb674973498e10246f72497b2c5bc1619062edea421dbcafec282ec2b34044c.